Everything can change in a moment be grateful

My name is Keyana Sullivan. I'm 27 and I have Pompe disease, which is a condition that deteriorates the muscles throughout the body. I was diagnosed at age 12. By the time I was 18 I could no longer stand. After high school I was enrolled in Ursuline College to major in fashion design. Unfortunately I ended up getting sick and going flat line so I never went. However I'm still here, thanks to the one and only God. With so much struggle and disappointments, I still manage to survive and overcome every obstacle. I take an infusion every two weeks for my disease to prevent muscle deterioration. I have to use a Bipap machine to help me breathe 24/7 because I can't breathe on my own. I have a health aide that comes everyday because I need help with everything. I did however end up doing online college and earning a BA in psychology. I have six urban romance books published on Amazon. I'm now currently going after my dream of writing television and film. I want my own production studio, I want to create organizations to help people who are poor and with physical disabilities. I have a list of things I want to do but mainly my goal is to make a difference. ☺️